The Stevie Fever For ALS Foundation aims to raise awareness and funds for lifesaving ALS research through various events and efforts.
Steve lived loud and loved big. We're taking the same approach with our fundraising.
We are focused on research and advocacy efforts to offer a better future to make ALS survivable. Only a few months before Steve's 50th birthday, he thought the most happening that summer was a party (sure with some dancing) and the re-opening of patios post-Covid restrictions. But as people affected by ALS know, this horrible disease shows up without any warning and not a lot of hope. The one thing he could do was share his story, and because of his big personality and the people he impacted along the way, the word spread quickly. Funds raised in honour of Steve have hit record numbers for the ALS Society of Canada! Steve's journey with ALS was fast and furious and is now over, but ours is not. It is just beginning.
ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig's disease, is a devastating and currently incurable neurological disorder that affects the nerve cells responsible for controlling voluntary muscles. While there are treatments available that can help alleviate symptoms, there is no cure for ALS at this time.
To make ALS survivable, we need to invest in research to better understand the disease's underlying mechanisms and develop more effective treatments. This requires increased funding for scientific research and clinical trials, as well as collaboration between scientists, healthcare providers, and people living with ALS.
Another critical factor in making ALS survivable is improving access to care and support for people living with the disease. This includes providing comprehensive care that addresses the physical, emotional, and social needs of people with ALS, as well as their caregivers and families.
Finally, raising awareness about ALS and advocating for policies that support people with the disease is also essential. This can help to reduce stigma, increase funding for research and support services, and improve the quality of life for people living with ALS.
While there is still much work to be done to make ALS survivable, progress is being made, and with continued effort, we can work towards a future where ALS is no longer a death sentence.