The Stevie Fever For ALS Foundation aims to raise awareness and funds for lifesaving ALS research through various events and efforts.
Steve lived loud and loved big. We're taking the same approach with our fundraising.
Our mission is to raise awareness of ALS and raise research and support funds. Only a few months before Steve's 50th birthday, he thought the most happening that summer was a party (sure with some dancing) and the re-opening of patios post-Covid restrictions. But as people affected by ALS know, this horrible disease shows up without any warning and not a lot of hope. The one thing he could do was share his story, and because of his big personality and the people he impacted along the way, the word spread quickly. Funds raised in honour of Steve have hit record numbers for the ALS Society of Canada! Steve's journey with ALS was fast and furious and is now over, but ours is not. It is just beginning.
Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disorder associated with motor neuron degeneration in the motor cortex and spinal cord, leading to muscle weakness and atrophy. It is the most common cause of neurological death in Canada. Despite currently available therapies, ALS remains rapidly debilitating and fatal with no effective treatment or cure.
Making ALS livable means finding new treatments, holding clinical trials for new drugs, and ramping up ALS research to help people living with ALS NOW. Your donation WILL lead to better care, longer lives, and a possible cure. How powerful is that?
Although it is a rare disease, ALS can one day be a treatable, non-terminal disease with enough awareness and funds to invest in research. The Stevie Fever For ALS Foundation needs your help to spread the word to END ALS!